World Hemophilia Day; A day to support the patients
Are you familiar with World Hemophilia Day? In general, hemophilia is considered one of the hereditary diseases, which unfortunately many people are diagnosed with it every year. Lawmakers have designated a day called World Hemophilia Day to support people who are struggling with this disease. We are going to talk to you about World Hemophilia Day and its features. So join us.
what hemophilia is;
Before addressing World Hemophilia Day, let’s examine what the disease itself is. This disease, which is included in the category of coagulation and hereditary diseases, is usually seen more in men. During this disease, people cannot have an effective coagulation mechanism during bleeding. The presence of defects, lack or absence of the necessary coagulation factors in this function has caused this problem to arise in the body of patients.
When the human body loses the ability to coagulate blood, it cannot form a clot. If there is a cut in the body or an impact that leads to a tear in the blood vessels of the human body, this issue will become very important. Keep in mind that hemophilia has many different categories and subcategories. Each of these categories has a series of special features and somehow affects the lives of patients.
Investigating the causes and symptoms of hemophilia
The causes of this disease in the body of people are genetic. It means that people inherit this disease from their parents. Sometimes parents only carry the inactive genes of this disease with them and are not sick themselves. To date, no other cause of hemophilia has been identified. This issue has caused researchers to conduct extensive research on this disease.
Of course, hemophilia has a specific symptom. Patients who struggle with this problem will lose their blood clotting ability completely. That is, if the blood vessels are damaged or a part of the body is injured, the healing process is long and painful.
Types of hemophilia
Another issue that we should pay attention to is related to the types of hemophilia disease. In general, people who struggle with this disease are divided into two main categories, A and B. Each of these categories has a series of special features and somehow they face special problems. Hemophilia type A or classic, is said to be a condition in which people have encountered this disease due to lack of factor 8. This disease is extremely painful and is one of the most difficult diseases in the world.
Hemophilia B, also known as Christmas hemophilia, shows its symptoms when the level of factor 9 decreases.
Keep in mind that this disease is one of the most expensive and difficult diseases in the world, which is inherited. This means that mothers can transmit this difficult and annoying disease to their children. This disease is much less common in women. Because the main activity of this disease depends on X chromosomes. Usually, experts and doctors can diagnose this disease from a young age and in 9-month intervals. On average, most hemophilia patients show their symptoms fully at 22 months of age.
As mentioned, doctors and experts can diagnose this disease from 9 months to 22 months of age. But what are the diagnostic tests for hemophilia? In response to this question, we must say that tests related to the diagnosis of hemophilia can have various sub-branches. Paying attention to the symptoms can reduce the need of people for hemophilia diagnostic tests in most cases. For example, excessive and uncontrollable bleeding in long periods of time are among the main symptoms of this disease that can affect people’s health.
Apart from this issue, doctors can use different tests to make sure that people have hemophilia. Among the diagnostic tests for hemophilia are tests to measure the amount of blood coagulation factors, tests related to complete blood cell count or CBC, tests related to measuring bleeding time, and molecular and genetic tests and sequencing. The full gene of factors 8 and 9 related to the genetics of this disease.
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World Hemophilia Day
Now that we have covered all the preliminary topics, let’s move on to World Hemophilia Day. World Hemophilia Day is a day chosen to support these patients. April 17th is Frank Schnabel’s birthday. Frank Schnabel is known as the main founder of the World Hemophilia Organization. As a result, people have considered April 17th as Hemophilia Day and recorded it in history. Remember that the World Hemophilia Organization has always supported these patients and has planned various programs for people on World Hemophilia Day.
World Hemophilia Day has a history of more than 50 years. The World Federation of Hemophilia, which is known as the main reason for naming this day in history, considers various programs for hemophilia patients on this date every year. Currently, more than 123 different countries are members of this federation. Iran can be mentioned among these countries.
In the member countries of this federation, the authorities must provide the equipment and medicines needed by hemophilia patients in full every year. Remember that charities and social work on certain days of the year, such as World Hemophilia Day, are used for volunteer activities to improve the living conditions of these patients. As mentioned, hemophilia is a special and extremely painful disease.
World Hemophilia Day and support for the patients
Maybe you also have a question, how exactly does World Hemophilia Day help the condition of these patients? In response to this question, we must say that until today, various campaigns have been designed to support hemophilia patients. One of the most effective and best campaigns related to supporting these patients is the World Hemophilia Day campaign. During this campaign, experts act to raise awareness and advertise for hemophilia patients. World Hemophilia Day helps patients who are receiving poor treatment services due to unfavorable social and cultural conditions.
One out of every thousand people suffers from hemophilia. Many of these patients have not even investigated their condition and do not show any special curiosity about it. Special campaigns, such as the World Hemophilia Day campaign, help these people to understand their conditions much more easily and start treatment processes. Increasing access to medicines related to this disease and increasing people’s level of awareness about certain diseases such as hemophilia can be considered as the main goal of choosing World Hemophilia Day.
last word
As you have seen in our article today, World Hemophilia Day is one of the most important campaigns designed for patients who are struggling with this particular disease. This campaign allows patients to get the necessary information and take action to improve their condition much more easily. It should be noted that campaigns related to the support of hemophilia patients can affect their future status and health. As a result, April 17th is considered an important day to raise awareness about hemophilia.